My life changing moment of 2010

For the past 2-3 years I have been having a myriad of unexplained, seemingly unrelated symptoms, that because of my insurance often landed me in the Emergency Room. Before October I had one of the states managed care companys (Harmony Health), and unfortunately that made it near impossible to get in to see a doctor.  I was becoming very frustrated with the system at this point. I had health insurance, I KNEW there was something seriously wrong with me and I was scared, I felt like an afterschool special waiting to happen.  Out of frustration I called down to the Governor of Illinois office and spoke with constituent services. I told them my tale, which for length purposes I have left out here, and they put me thru my personal she-ro Debbie who is in charge of the states health system. Debbie was wonderful she went above and beyond and changed my insurance to a plan that would allow me to see a doctor. My first doctors visit was strange, she didnt seemed to believe what I was telling her and made me feel like I was just seeking meds, which I wasnt. Yet to her credit she ordered a number of test which I had done.  When my blood work came back my liver enzymes were extremely elevated and I had a Rheumatoid factor of 116 (normal is 0-20). I told here i was in constant pain, I tend to have a high tolerance to pain as well so if I am complaining about it, its real. Problem is I hate pain killers and their side effects so I didnt want that I want to fix the problem and eliminate the pain not just mask it. The Dr ordered more tests and again blood drawn, sonogram of liver and kidneys. Again I get the letter that nobody who has had a medical test wants to see, abnormal results. On what my Dr refered to as "the lupus test" (my ANA levels) was positive and speckled with a low-High level my sonogram showed a small tumor on my liver and another on my left kidney which the Drs believe are benign and normal-ish (have to do an MRI to be sure). At this point the Dr felt I may have lupus or some other Connective tissue disease so she is sending me to a Rheumatologist for that and I also went to see a Gastroenterologist who has ordered a test to rule out autoimmune hepatitus. He also feels like it is lupus but said occasionally autoimmune hepatitus can develop and wanted to be safe.  So now I am waiting to get an appointment with a Rhematologist, no easy task believe me, so I can finally find out what is wrong with me. So far my research says it is Lupus, but there is a small part of me hoping it is something else. Lupus is a serious disease. Did you know there has not been a new lupus drug in 50 years. I was shocked to read that statistic, in this day and age, all the technology we have. The treatment for lupus can cause a host of serious side effects. I just dont know what to think. I know my immune system is attacking my body and possibly my liver. I KNOW I just want to feel normal again, but I am starting to wonder if that will ever happen. So now I wait and hope the illusive Rheumatologist will actually help or just order more tests and shuffle me off to some other kind of doctor.